More Evidence Supports the Need to Protect Confidentiality in Adolescent Health Care. English A. Ford CA. Journal of Adolescent Health.. 2007;40:199-200. (editorial)
The Center for Adolescent Health & the Law has produced: Policy Compendium on Confidential Health Services for Adolescents, Second Edition, 2005, edited by Madlyn C. Morreale, Amy J. Stinnett, and Emily C. Dowling and published by the Center for Adolescent Health & the Law in Chapel Hill, North Carolina.
The Compendium contains excerpts from the official policies of 20 professional medical and health care organizations whose members are involved in the care of adolescents. The Compendium includes material drawn from organizational position statements; resolutions; position or policy papers; comments submitted in response to proposed regulations; testimony or letters submitted to Congress or the Administration; codes or principles of ethics; and other formal organizational practice guidelines. The material drawn from these formal policy documents is organized and analyzed according to such themes as the rationale for supporting confidential health care for the general population and for adolescents in particular; policies and procedures to protect confidentiality; the role of parents and guardians in adolescent health care; the importance of informing adolescents and parents about confidentiality protections and limits to those protections; policies about informed consent and confidentiality for specific services; confidentiality concerns for particular populations of adolescents; and statements about confidentiality in particular health care settings. The Compendium includes both verbatim quotes from the policy documents themselves and extensive tables analyzing the material. This second edition of Policy Compendium on Confidential Health Services for Adolescents, resulted from a collaboration between the Center for Adolescent Health & the Law, the American Medical Association (AMA), and members of the AMA National Coalition on Adolescent Health and the AMA Educational Forum on Adolescent Health.
Table of Contents
Preface & Introduction (pdf)
Key Findings & Tables (pdf)
General Statements about the Importance of Confidentiality (pdf)
General Policy Statements that Address Adolescents’ Access to Confidential Health Care, Including the Roles of Parents and Guardians in Adolescent Health Care and Procedures to Safeguard Adolescents’ Confidentiality (pdf)
Policy Statements about Confidentiality Concerns for Particular Populations of Adolescents (pdf)
Adolescents who have run away, are homeless, or are living on the street Adolescents in state custody Adolescents who are gay, lesbian, bisexual, or transgender Pregnant and parenting adolescents
Preventive health services Dental Services Contraception, pregnancy-related services, abortion, and other reproductive health services Testing and treatment for HIV and sexually transmitted infections Mental health and substance abuse services
Schools and school health centers College health services Emergency departments Managed care settings
Appendix A: Contact Information for Organizations Represented in this Compendium (pdf)
Appendix B: Index by Organization (pdf)
Appendix C: Significance of the HIPAA Privacy Rule for Health Care of Adolescents (pdf)
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Health Care for Adolescents: Ensuring Access, Protecting Privacy. English A. Clearinghouse Review/Journal of Poverty Law and Policy. 2005;39:253-271.
Measuring Public Costs Associated with Loss of Confidentiality for Adolescents Seeking Confidential Reproductive Health Care: How High the Costs? How Heavy the Burden? Brindis CD, English A. Archives of Pediatrics and Adolescent Medicine. 2004;158:1182-1184.
Confidential Health Care for Adolescents: Position Paper. Society for Adolescent Medicine. Journal of Adolescent Health. 2004;35:160-167 (prepared by Ford CA, Engliah A, Sigman G).
The HIPAA Privacy Rule and Adolescents: Legal Questions and Clinical Challenges. English A, Ford CA, Perspectives on Sexual and Reproductive Health. 2004;36:80-86.
Limiting Confidentiality of Adolescent Health Services: What are the Risks? Ford CA, English A. JAMA. 2002;288:752;53.